Stop Skipping the Most Important Part: Being With Me In My Struggle Is Medicine for Us Both

Doctors often want to look at the bright side. They point to progress, milestones, changes in tone or function. They want to give hope. But in doing so, they often skip past the truth that I’m still struggling every day. They jump to the positive and bypass the pain. They’re reaching for resolution when what I need is recognition.

It might seem like I’m asking a lot when I ask them to stay with me in the hard parts. I get it. It might feel like holding space for me means admitting I’m not okay, that their patient could still die, that the outcome is uncertain and painful. That’s not easy for anyone, especially someone trained to fix, to solve, to cure.

But being with me where I am is the most healing thing. Not pretending I’m further along and not reassuring me that I’m better. The most powerful thing a doctor can do isn’t always found in prescriptions or procedures. It’s in presence. Not the kind of presence that looks for the silver lining or tries to move on from the discomfort, but the sort that stays with me in it.

From an Interpersonal Neurobiology lens, we are regulated in connection. When another person can sit with us in our truth–even when it’s dark, uncertain, or terrifying–our nervous system registers safety. That co-regulation, that being-with, is what brings the possibility of real healing. Not cheerleading. Not false hope. Not evasion.

The human nervous system responds to truth. It responds to attunement. It softens when someone is willing to be there, even in the darkest places. That’s the deepest kind of strength. What I need from my doctors is not a dose of optimism, but their willingness to stand beside me in the reality of now.

If I can’t rely on them to be with me in my distress, who can I trust? I’m left to carry it by myself. And no one heals alone.

About Shay Seaborne, CPTSD

Shay Seaborne CPTSD teaches Relational Neuroscience for stress reduction, trauma recovery, and community building. Shay has studied the neurobiology of fear / trauma /PTSD since 2014 and Interpersonal Neurobiology (IPNB) since 2019. They write, speak, teach, and make art to convey their experiences as well as their understanding of the neurobiology of fear, trauma theory, Interpersonal Neurobiology concepts, and principles of trauma recovery. A native of Northern Virginia, Shay settled in Delaware to sail KALMAR NYCKEL, the state’s tall ship. But once they finally had mental health insurance, their life rapidly changed. The standard treatment for PTSD nearly killed them. The psychiatric abuse began a cascade of negative medical encounters that repeatedly caused additional harm and the development of severe Medical PTSD. Shay wishes everyone could recognize that "mental health problems" are symptoms of dysregulation, our mainstream culture is neuro-negative, and we can heal ourselves and each other through awareness, understanding, and safe connection.
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