I have been fighting for my life daily for 8 years. Before that, there was already a lifetime of abuse from people in positions of power, most often from caregivers. The medical and psychiatric abuse of the last eight years is on top of everything that came before. There has been no accountability, justice, or real recourse. I have only my lived experience in this body and the ability to tell the truth about it.
Those years have taken a massive toll on every part of my health and greatly reduced my quality of life. When a body is kept in prolonged states of threat, instability, and unmet needs, it affects sleep, digestion, immune function, pain levels, and energy. It impedes the ability to repair. For four years, I have been on a kind of yo-yo trajectory, with some improvement, then collapse, then clawing my way back again. The four years before that, I was barely functioning at all.
Most people would not survive that kind of sustained load. I did, and the only reason was Relational Neuroscience. It showed me that every organism naturally moves toward life and integration, and that integrated relationships are integrative. I kept myself alive by learning how the body organizes around connection, safety, and predictability, and then fighting to build those conditions even when everything around me worked against it.
Relational Neuroscience gave me options most people never knew existed. It revealed that my symptoms were responses to conditions under which I lived. So if I could change the conditions, even a little, my body could respond.
That is how I knew I had to find doctors who could meet me at the nervous system level. I needed those who were able to connect in ways that my body could register as safe and reliable. Doctors who would believe me, attune, and stay present enough that I could begin to trust them.
I had to winnow out a lot of doctors to find a few who are up for that kind of connection. Most are not. Many cause more harm because they cannot stay steady in the face of what I bring. They dismiss, override, and reduce everything to checklists and protocols. That keeps the body in a state of threat.
The doctors I have now are consistent and responsive. They do not pull back from complexity. Such reliability changes physiology over time. It allows for moments where my body does not have to brace. Importantly, those moments add up. So much depends on whether people are able to stay present with the truth of each other’s lived experience.
If your doctor doesn’t treat you well, that is not your doctor. Especially if you do not have other reliable relationships in your life. When care is one of your only points of human contact, the quality of that connection is foundational.
Through Relational Neuroscience and the conditions I have been able to build, my quality of life has greatly improved. My symptoms have reduced enough to make life more livable at times. That is the only reason I can even ask the question, “What is possible from here?”
At the same time, I deal with the cumulative impact of everything that has happened. Years of instability and harm do not leave the body untouched. There is wear and tear, and real concerns about how much recovery is possible and how long my body can hold up under the brutal conditions it has been forced to endure.
There is also urgency. I have a desperate need to maintain my ability to live alone and take care of myself. That is already fragile. It needs to improve and to be protected, because there is no viable alternative.
There is nobody and no institution I can trust to take care of me if I lose that capacity. The default in that situation is institutional placement. From my few encounters with it, I know exactly what that means. Institutional care is an oxymoron. Those environments remove autonomy, disrupt connection, and often increase the conditions that make bodies deteriorate faster. So my focus is on maintaining the conditions that allow me to remain a person in my own life.
I live with a sense that my future may be shortened. That comes from what I have lived through and what I still deal with physically. It also comes from knowing how dependent my stability is on a small set of thin resources: housing, finances, social connection, and access to care. If one of those is disrupted, the impact is immediate.
So there is pressure to stabilize enough, maintain what I have built, and do the work that matters to me before something gives way. My hope is grounded in what I have already experienced through Relational Neuroscience.
I have seen what happens in my body when the conditions shift. I have graphed my symptom reduction and have felt my capacities significantly return. I have experienced that even after extreme and prolonged harm, change is possible when the environment supports it. Nothing else I have tried–including numerous therapeutic modalities and over a dozen therapists–has done anything close to that.
If I am to have a good life, and if I can be here for perhaps another ten years, it will be because I continue to build and protect those conditions. It will be because of Relational Neuroscience and the relationships that make it real each day.
There are no guarantees, but Relational Neuroscience is the one thing that has consistently moved the needle in the direction of integration and life.