Near Death, Disbelieved, and Abandoned

“I haven’t had a shower since Monday so that’s my goal today. Have a shower. Also go for a walk would be good. if I can. I’ll see how my pain levels are and my energy. I can ignore pain and I can push through but it takes energy. And my energy goes into holding myself upright, making myself do the basic things that keep me from going under. the rest of it just has to be flotsam,” I wrote in my journal on October 22, 2020

Hypercritical allostatic load spiraled me nearer to death each day and my two prime providers dismissed my concern.” My body says I might not make it,” I told them. I knew this was afferent information from the nervous system, telling me I was in grave danger.

“You’re just hungry,” my PCP proclaimed, having asked no question about my lived experience. She heard the word “shaky” and made a quick assumption and diagnosis during a telehealth visit.

“That’s just one of your parts,” my then therapist asserted, without allowing exploration of the supposed part. When I brought it up again, she broke down crying, “I guess I just don’t have the bandwidth!” 

Fortunately, I had long studied the neurobiology of trauma and had found “The Distortions of Life Force” chart. This helped me understand my predicament. I was stuck in the top left corner. Unfortunately, even this beautiful diagram could not resolve my providers’ certainty and lack of curiosity, a very bad combination.

Abandoned by my supposed caregivers, I was on my own and near death again, as I often was in childhood. I knew from experience and Relational Neuroscience that, “focused attention is our superpower,” so I focused my attention on not dying, a skill I developed early. 

I barely made it through, and spent months focused on recovery, hardly able to function. Again, my providers would not believe my lived experience. Denial of the lived experience makes trauma worse. And it has been the number one impediment to my recovery.

I ditched the psychologist for a NeuroAffective Relational Model (NARM) therapist, which was far more in line with my needs. A year after the primary physician abandoned me I finally had the energy to find a new PCP. Practitioners who can’t believe what a person says about their lived experience in their bodies are terrible for people with trauma. They cannot help, only cause more harm. NEXT!

About Shay Seaborne, CPTSD

Shay Seaborne CPTSD teaches Relational Neuroscience for stress reduction, trauma recovery, and community building. Shay has studied the neurobiology of fear / trauma /PTSD since 2014 and Interpersonal Neurobiology (IPNB) since 2019. They write, speak, teach, and make art to convey their experiences as well as their understanding of the neurobiology of fear, trauma theory, Interpersonal Neurobiology concepts, and principles of trauma recovery. A native of Northern Virginia, Shay settled in Delaware to sail KALMAR NYCKEL, the state’s tall ship. But once they finally had mental health insurance, their life rapidly changed. The standard treatment for PTSD nearly killed them. The psychiatric abuse began a cascade of negative medical encounters that repeatedly caused additional harm and the development of severe Medical PTSD. Shay wishes everyone could recognize that "mental health problems" are symptoms of dysregulation, our mainstream culture is neuro-negative, and we can heal ourselves and each other through awareness, understanding, and safe connection.
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